Monday, April 30, 2007
Sunday, April 29, 2007
Well it became quite evident one day that this was just not the case. Instead of having irritable babies we had irritable babies that were projectile vomiting. At first we thought we could just bear with it but when Andrew was sitting in his swing and I saw his lunch shoot half way across the room, I knew it was time to go back on. We saw an immediate improvement in Adam but for some reason Andrew is still projectiling. This really tries your patience, believe me, especially when you've changed your shirt several times only to get slimed once again by milk that contains stinky brown multivitamin. But thankfully it doesn't seem to be causing him any pain right now. Hopefully things will improve quickly, poor little guy.
Saturday, April 28, 2007
Friday, April 27, 2007
Please continue to keep the Andersons and their entire extended family in your prayers as they grieve the loss of their youngest child.
Thursday, April 26, 2007
I'm probably not going to make much sense in trying to explain the symbolism I've been living with over the past 10 weeks that the boys have been home. I've been reminded daily of the freedom which Christ offers us at the cross. Freedom from the chains of sin, the burden that weighs us down before we become believers and the weight that is freely lifted and carried by Christ when we put our trust in Him. We often hear sin compared to chains but few of us have ever been literally tied down before and really know what a burden it is to be chained and therefore how truly amazing it is to finally be free.
Not only were the babies chained to an oxygen machine which is plugged into a wall outlet, they also were chained to an apnea monitor that was plugged into yet another wall outlet. Multiply by two and you have a big tangle of cords. It took logistical planning just to get from the portacrib to the changing table to the couch where we fed them. There was no spontaneous carrying of the baby into the kitchen when the phone rang or to grab a drink from the fridge. No sneaking them into our room for a family cuddle during a movie. Every move took planning and forethought.
Adam & Andrew didn't know they were chained down. They didn't know that they had barely ever left the house, much less the living room. And most of all they didn't know that we had prepared a special place just for them, decorated in the sweetest blues and greens with their names hanging above their beds. Not unlike us, when before knowing Christ we were blind to all that we were missing out on and blind to the depth of the burdens that we bear.
Adam is now officially off his apnea monitor 24/7, no more cords, no more chains, nothing tying him down. It's amazing to not ever carry a monitor bag over your shoulder and/or an O2 tank to take him out of his crib and put him in the swing. Carrying him around the house is like a breath of fresh air. I've now introduced him to the fridge and all the bathroom mirrors and the back porch. It's something most all of us take for granted, a wireless baby. Again I'm reminded to count my blessings and thank Jesus for lifting so many burdens and reminding me again of the ultimate burden He lifted for me by His death on a cross.
Hopefully only another 4 weeks until Andrew is free of his Apnea Monitor too!
Wednesday, April 25, 2007
No he's not modeling the new Kevin Federline line of infant attire in the photos below. That's a nifty little hospital netting shirt to keep the mess of wires under control from the holter monitor which is testing his heart for abnormal beating patterns. Good news, we don't have to drive back to Houston as previously told to turn everything in, they gave us packaging to mail it all back, what a relief!! We feel pretty good that he will get a good report and are praying for such. The only thing I'm really nervous about is that he not get sick from having to sit in some yucky and extremely full waiting rooms yesterday with little kids coughing all around us, yikes!
Tuesday, April 24, 2007
My heart is completely broken in pieces. My soul aches for this family, please pray for them and lift them up as they mourn the loss of their baby boy.
Our experience was barely a fraction of their suffering and we hurt so deep, how much more so must the Andersons hurt today, I cannot even bear to think of it.
Hold tight to the things that matter, life is so very fragile.
WPC email update:
Beloved Westminster family and extended family of Christ, thank you for your continued prayers for the Andersons. Please continue to pray fervently and without ceasing for the family (I Thes. 5:17). Last evening around 9:00 p.m. Knox went home to be with Jesus. Jon, Rachel, and the family are grieving but are strengthened by the knowledge of Christ’s redeeming love. As well, they are appreciative of your prayers, love, compassion, and readiness to serve them in this difficult time. Please pray that the Anderson family will experience the hope and love of Christ in their grief over Knox’s death. Pray that God would sustain them in his steadfast love. Pray that they would find comfort in God’s covenant and eternal promises to us and to our children.
Westminster is committed to assisting the Anderson family with any spiritual, emotional, physical and financial needs. Those wishing to assist Westminster in supporting the Anderson family may give to the church’s “benevolence fund”.
The LORD Is My Shepherd A Psalm of David.
1The LORD is my shepherd; I shall not want. 2He makes me lie down in green pastures.He leads me beside still waters. 3He restores my soul.He leads me in paths of righteousness for his name's sake. Even though I walk through the valley of the shadow of death, I will fear no evil,for you are with me; your rod and your staff, they comfort me. 5You prepare a table before me in the presence of my enemies;you anoint my head with oil; my cup overflows. 6Surely goodness and mercy shall follow me all the days of my life,and I shall dwell in the house of the LORD forever.
Monday, April 23, 2007
So now Granny and I are preparing for our long day tomorrow. We will leave pretty early and probably have to sit in rush hour at least once, yikes! Kenny will get to have one on one time with Adam while we are gone. Praying for no more O2 for Andrew!!
Tomorrow Andrew has an all day pulmonary marathon at Texas Children's followed by a trip to their cardiology department to repeat his 24 hour holter EKG to examine his heart.
Wednesday we have to return to TX Children's to cardiology to remove the holter.
Praying for lots of good news, especially that his lungs would be ready to discontinue the oxygen support that he's still on and that his heart is healthy and beating properly.
Saturday, April 21, 2007
Today Knox had another EEG. The results showed minimal brain activity. Doctors are not optimistic about Knox’s medical prognosis.
Pray for the Anderson family as they look for God’s direction over the coming days. Pray that God would sustain them in His steadfast love and give them wisdom as they wait and watch to make important decisions over the weekend. Jon and Rachel are trusting in God’s providence and are looking to Him continually for His help. Please continue to uphold them in your prayers.
Psalm 40:1-3 “I waited patiently for the LORD; he inclined to me and heard my cry. He drew me up from the pit of destruction, out of the miry bog, and set my feet upon a rock, making my steps secure. He put a new song in my mouth, a song of praise to our God. Many will see and fear, and put their trust in the LORD."
Friday, April 20, 2007
Thursday, April 19, 2007
The whole Anderson family was able to be together today in Temple and had a good visit. Continue to pray for them as the children have come back to Bryan and Jon and Rachel stayed with Knox in Temple. Please pray for encouragement, hope, and peace in the Lord for all of the Anderson family.
The doctors are continuing to monitor Knox’s medicine level, and are waiting for the anti-seizure medication to dissipate from his body before performing another EEG scan and other testing. Continue to pray for his responsiveness to stimuli, that the medication would decrease to acceptable levels in order to perform another scan, and that the results of this scan would show positive brain activity.
Wednesday, April 18, 2007
The boys have been especially irritable over the last week, crying as much as 6 hours non-stop so the doctor is looking into the possibility that this may be a side effect of some of their medicines so we are changing a few and will try to eliminate a few to see if things improve. Poor little guys are on so many medications still and they all have side effects. The goal is to help them be more comfortable but not at the risk of increasing the problem they were on the medication to begin with.
Tuesday, April 17, 2007
Dear Westminster family,
Today has been a pretty steady day with Knox’s condition remaining consistent with yesterday. They are continuing to lower the dosage of the anti-seizure medicines. His heart and lungs are stronger and they have been able to lower the level of some of the medicines that were used to stimulate his heart and lungs. The doctors/medical team has decided to wait another day before repeating the EEG or other test to help determine brain activity. Please continue to pray that Knox will not experience seizures, and that his pupils become equal and responsive to light stimuli. Pray for Jon and Rachel and other family members that they may rest in the steadfast love of God. Thanks for you continued prayers.
Psalm 26:3 “For your steadfast love is before my eyes, and I walk in your faithfulness.”
Monday, April 16, 2007
An email update from the church:
Dear WPC family,
On behalf of Pastor Wade, Jon and Rachel Anderson and family, we want to thank you for your loving prayers and outpouring of love being expressed and shown to the Anderson family during this very difficult time.
During the night Sunday or very early Monday morning, Knox’s pupils became unresponsive and uneven when stimulated by light. The doctors are reducing the amount of anti-seizure medicine in order to better assess Knox’s situation.
Today, please pray specifically for the following:
1. his pupils would be both equal and responsive to light stimuli
2. there would be no more seizures
3. the EEG done today was not flat-line but showed minimal brain activity. The doctor is pessimistic. They will continue reducing the anti-seizure medicine and will do other EEGs
Thank you for keeping Knox and his family in your prayers!!
"In the same way, the Spirit helps us in our weakness. We do not know what we ought to pray for, but the Spirit himself intercedes for us with groans that words cannot express. And he who searches our hearts knows the mind of the Spirit, because the Spirit intercedes for the saints in accordance with God's will." Romans 8:26-27
Sunday, April 15, 2007
Please pray for a peace that surpasses all understanding for his parents and family.
Pray big, our God is able. Pray that it would be His will for a FULL recovery.
Saturday, April 14, 2007
"Do you not know? Have you not heard? The Lord is the everlasting God, the Creator of the ends of the earth. He will not grow tired or weary and His understanding no one can fathom. He gives strength to the weary and INCREASES THE POWER OF THE WEAK. Even youth grow tired and weary, and young men stumble and fall; but those who HOPE in the Lord will renew their strength. They will soar on wings like eagles; they will run and not grow weary, they will walk and not be faint." Isaiah 40: 28-31
"Do not be anxious about anything, but in thanksgiving, by prayer and petition, with thanksgiving, present your requests to God. And the peace of God, which transcends all understanding, will guard your hearts and your minds in Christ Jesus." Phil 4:6-7
Friday, April 13, 2007
Wednesday, April 11, 2007
Today we got our final required RSV shot of the season at the yucky community health center (they are a staggering $5,000 a pop per baby but definitely worth it!).
They weighed the boys and Adam is now over 8 pounds at 8 lbs 4 oz, almost as big as I was at birth. And Andrew now weighs 7 lbs 12 oz. My BIG boys!! They are now more than 400% of their birth weights!!
Monday, April 09, 2007
Sunday, April 08, 2007
Saturday, April 07, 2007
Thursday, April 05, 2007
Kenny knows how to thaw out frozen breast milk, add the right amounts of sodium chloride, potassium chloride, and neosure so they will be just right for the boys. He can draw up over 30 different syringes of medicine all in different quantities for each baby and then administer it to them at the scheduled time. He hooks up oxygen tanks and apnea monitors, attends about a million doctors appointments and always puts on just the right amount of prescription diaper rash cream on those tiny bottoms.
AND on top of all this, he helped me take the boys to their first ever photo shoot this week where his clothes were totally drenched and dirtied after the boys both peed and even pooped on him between shots since they were "in the buff" (the babies, not Kenny). He promises this was the LAST photo shoot he will ever attend, LOL!! We shall see about that ;-).
Kenny, You never asked for or expected all of this and it certainly seems like nothing ever comes easy for us but I certainly couldn't have done this without you. There is no other person I would want on this journey with me! You are a good man and your character always shines through when times are tough. Thank you for all the sacrifices that you make for your family. I love you so very much!!
Whomever coined the saying that "the first 6 weeks with a newborn are hard and then it gets so much easier" obviously didn't have preemie twins. Poor babies are so colichy and gassy and they seem to be getting harder to entertain. Does anyone know how to get 2 babies to sleep at the same time?? Is there anything better than mylecon for gas pains?? I'll pay you to share your secrets ;-)!! We are sure nuts about these babies but a little more sleep would certainly do us all some good!