Friday, September 28, 2007
I just got a call from the pediatrician's office and the kidney x-rays and ultrasounds both look totally normal!!! Yay, another bullet dodged! They said they each had a likelyhood of 50% of having issues so it's really great that neither of them does! We can now check kidneys off the list and eliminate that potential surgery. I've had a lifetime of issues due to this, including spending the last night of my honeymoon in Maui Memorial Hospital with a severe kidney infection. I'm hoping this means they won't ever have to deal with anything like I've had to over the years with regards to this, I can't tell you how happy that would make me.
Monday we have two appointments, another helmet adjustment followed by our 6 month eye follow up exam. I'm not anticipating to have any trouble with their eyes, neither baby shows any sign of tracking issues, crossed eyes, lazy eyes, or eyes turning in. These are all common preemie issues that we seem to be avoiding so far.
In milestone news I forgot to mention that both babies have finally found their feet this month. Andrew found his first followed by Adam a week or so later. I think Adam had a hard time reaching his because his big belly was in the way ;-).
Tuesday, September 25, 2007
Well we finally got the opportunity to meet in the "real" world and what fun we had! Her little miracles are doing fantastic, you'd never know they came early. It's so encouraging to see a NICU success story and also to see how much fun we have to look forward to as ours grow up and do new things. What great kids they are! I was so impressed with their brave mommy who brought them all by herself without any extra help so of course I had all kinds of questions for her on how she does it all. I can't wait to get together with them again!!
- excellent fine motor skills (great use of hands)
- mixed gross motor skills (great at sitting but not rolling yet)
- mild speech delayed (not making enough consenant sounds or imitations)
- mildly increased tone in left leg ("toe" standing/not flexing ankle)
- excellent social skills, eye contact, interaction
- delayed fine motor skills (favors right hand, uses immature grasping techniques)
- excellent speech (lots of preverbal babbling & sounds but hoping he'll imitate more)
- mixed gross motor skills (good rolling but not sitting)
- all muscle tone actually looks good and his delays are more "functional" rather than musculature (his brain is not yet telling his muscles how to react but the muscles are normal)
- excellent social skills, eye contact, interaction
Interestingly, their weakness and strengths are opposite from each other, where one is lacking the other makes up for it. He feels the delays are very mild at this point and mainly immaturity and "ought" to be outgrown. He advises to continue physical therapy 2x's a month and occupational therapy 2 x's a month. He will see them again in 6 months unless we notice anything "troublesome".
We are pleased with the appointment too, things look about as good as we could hope for at this point, as in that nothing severe is manifesting itself thus far.
Sunday, September 23, 2007
Saturday, September 22, 2007
"This award is for those bloggers who are nice people; good blog friends and those who inspire good feelings and inspiration. Also for those who are a positive influence on our blogging world. Once you’ve been awarded please pass it on to others who you feel are deserving of this award.”
I also think Heidi is not only nice but also very inspirational. Check out her blog as she chronicles her personal journey of faith as they've recently gone from a family of 6 to a family of 11!!
I can't choose only a few to pass the award along to because there are just too many awesome bloggers to choose from as you can see by my sidebar links. So I just want to say a general "Thank You" to all the other bloggers out there that share their unique story and offer encouragement and support to friends in both the "real" world and the online community.
Friday, September 21, 2007
The very good news is that she feels confident that both of them will be able to walk =-) and likely within a year's time. Andrew has some balance/control issues and trunk weakness that will likely put him walking after Adam but just knowing that in time he will most likely walk is awesome after being initially told in NICU that he might never walk. Praise God. The pt said multiple times that she has seen many babies with similiar histories and that we are very lucky that ours are doing so well, especially Andrew. I told her that many many people had prayed for them and how blessed we are. Thank you for praying!
Next week will be even busier. On Monday we go back for another helmet adjustment. We can see improvement in Adam's head already!! Tuesday we have our major followup appointment with the pediatric developmental specialist at The Children's Learning Institute. I completed the developmental inventory and sent it off to the specialist yesterday. Of course I'm very anxious about what they'll tell us. Both boys seem to have strengths and weaknesses in all different areas. Andrew is very verbal and rolling all around, Adam is sitting very well and great with his hands. It's neat to see how very different they are from each other. Kenny is taking off work to attend the developmental appt with me. I hope the dr echoes the what the pt said and that their delays are immaturity rather than impairment. But either way, we Praise God for these precious little lives we've been chosen to care for.
Then Wednesday we have to be at the hospital at 7:30am for our kidney ultrasounds and xray/dye procedure. Also coming up is our follow up with opthomalogy on Oct 1st to check up on how their eyes are doing.
I hope I can keep track of getting us to the right places on the right days at the right time!
Thursday, September 20, 2007
Tuesday, September 18, 2007
The quotes say:
"My brother is my best friend"
"I'm not a mamma's boy, but Boy do I love my mom!"
"Just like Dad"
"Blessing from above"
"With boys you always know right where you stand. Right in the path of a hurricane."
"Make a joyful noise"
"Delight yourself in the Lord . . ."
"Thank Heavens for little Boys"
The definitions of "Miracle" and "Explore"
Monday, September 17, 2007
Sunday, September 16, 2007
Friday, September 14, 2007
Wednesday, September 12, 2007
(Twice his birth length!!)
18 lbs 15 oz & 26 3/4" long
(On the chart in length & weight!!)
We have to go back in the beginning of October to get their flu shot and we are also getting Synagis again this year which helps them fight RSV. It's hard to qualify for Synagis because it has a tightly controlled supply and very expensive so I'm glad that it looks like we will be able to get the extra protection again this year. He also agreed that physical therapy will be a good idea but he's not majorly concerned with their progress at this point. Next up will be kidney ultrasounds and a catheter/dye x-ray procedure to check for vesicoureteral reflux. They can blame me for this one though ;-) and not their early birth, I had to have surgery at age 3 for this condition which is often hereditary.
Praise God for Growing Boys!!
After discussing scheduling our Flu & RSV shots with the pediatrician today it got me thinking about what our plans are for this upcoming Flu/RSV season. We are supposed to start the shots in October already!! Last season we never left the house except for doctor appts but the boys were still so medically fragile and on oxygen and diuretics. Ever since we started leaving the house over the summer life got so much better for Kenny & I. All those months of hibernating really got to me and the walls were closing in. Though I'm sure we will limit our activities some I don't want to completely hole up like that again.
Lately we've had a lot of encounters with strangers touching the babies before we get a chance to say something. Well today I heard another preemie mom mention this little sign as the best $10 she ever spent and so I've decided to order it and give it a try. Perhaps to some it will be "overzealous" but we were told the boys' lungs won't be caught up until at least age 2 and RSV or Flu could easily land them back in the hospital. So I don't mind at all doing what I can to keep them safer and still have somewhat of a normal life outside these walls, even if that means funny looks from strangers. Oh wait, in our helmets, we get those funny looks anyway ;-)!!
Tuesday, September 11, 2007
Sunday, September 09, 2007
It's not very often that you see prematurity covered in the media from this perspective including the effects on mental health, marriages, and the reality of caring for a preemie post-NICU. I think it's important to educate people on the reality of prematurity out of respect for Adam & Andrew and what they've been through along with all the other preemies out there. We preemie moms often hear things like "How fun you had a preemie, they are so tiny and cute with their little clothes", "You are so lucky that you didn't have to experience the 3rd trimester", "How great that you got all that extra time to know your baby", "Don't worry, my friend's baby was 4 weeks early and she's perfectly fine", "You can always just have another baby". I think the majority of the general public (though probably not the readers of this blog) just doesn't "get" it.
(when you open part two it may ask for you to sign up for free, if you don't want to do that you can close the browser and come back here and re-open part 2 and then it will work)
Saturday, September 08, 2007
He'd been getting pretty close the last couple of days and then all morning today he'd roll over as soon as I laid him on his back. Way to go Andrew!! Our occupational therapist will be so proud since we've been working on this one for a while. Hopefully Adam will decide soon that he can do it too, although he hates being on his tummy so he doesn't have much incentive to learn this trick. I'm so proud of you Andrew! Every accomplishment is another opportunity to Praise God!
Also a shout out to Adam for saying "Da Da" several times for the first time today, too bad Da Da wasn't around to hear it himself! Way to go Adam!